At issue are the potential long-term effects of repeated episodes of high heart rate and high blood pressure that accompany intense exercise. Thats an issue to pursue with your sons doctor(s). This international evidence-based nomenclature and classification consensus document is intended for universal use by clinicians, imaging specialists . Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. Im not aware of studies explicitly about athletes after Ross procedure for BAV. Most people require treatment once symptoms develop. These differences of opinion may be legitimate. I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. This almost seems like an off the shelf answer and Id therefore be really keen to find out your thoughts? Other heart parameters are very good (no bigger chamber or aorta). I am a keen weightlifter, which is the basis of this post. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. I think you understand the guidelines correctly. On April 16, 1997, Arnold Schwarzenegger underwent elective heart surgery to replace a defective, congenital aortic heart valve. The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. Thank you for taking the time to respond to my post. I have recently found out that I have aortic regurgitation will soon be needing surgery. Jeff. Questions about Bicuspid Aortic Valve!! Here is a link to a diagram that categorizes sports according to their dynamic and static components: http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png. I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. Celebrities with congenital heart disease Details Published: January 27 2016 . To help correct the regurgitation, the cusps of the patients valve leaflets can be tailored, with the valve leaflets left in place. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. I went through the regiment of meds that are prescribed post AFIB. 2; Thank you very much for your answer. I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. Sheer brutality and trauma caused Myasthenia Gravis. Thank you for nice article. Its always good that investigators are looking for new solutions to old problems. I am an amateur runner, I do not participate in competitions. The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. 2. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. Hi . Do you think the jiu-jitsu (e.g. Do you think I should slow down a little bit? All rights reserved. Your email address will not be published. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Get on with it. Think to report back to let us know how things go for you, personally. I have only played a few games of football in the last 5 years due to a knee injury but I have continued running for fun and do 5k in a reasonable 25 minutes. I would defer to Dr. Dietz since youve already contacted him. Im 33 from UK and have known about my BAV since I was around 18. It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. I excercise 2-3 times a week, namely cardio and weight lifting. Danny. You already have a cardiologist looking after you. Im not looking forward competitions nor marathons. This award-winning website has helped over 10 million people fight heart valve disease. Options for operation If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Im not surprised that youve received a conservative recommendation about exercise. From your reading, or even just here at the blog, youll know that its not an unusual story. However, my most recent scan in October revealed all Stenosis and LV thickening had gone completely (Doctor said this was a very positive result perhaps due to excercise and medication). In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. Im hoping you can help with some guidance. I seen my cardiologist yesterday and this is the first year in 4 years that the aneurysm hasnt grown a mm. He loves sports and is wanting to do more and more. On March 30, 2018, we learned that Arnold Schwarzengger required a second heart surgery. A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. Anyway, his aorta was growing at a rate of 2 mm per year (he was growing faster:).and they put him on 100 mg Losartan. Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. Bicuspid aortic valve is a type of abnormality of the aortic valve. In addition, I will get a random bout of lightheadedness when standing or sitting in a awkard position. Prescriptions for safe exercise will need to be carefully tailored to your particulars. My son is desperate to be able to play sports without any restrictions. Very likely an operation will be needed at some point in the future. Consensus guidelines from the Proceedings of the 36th Bethesda Conference recommend: The first recommendation does not include the endurance sports. Good to hear that youre making a good recovery from your second operation. One young man's complications from a bicuspid aortic valve were life-threatening, but perseverance and expert care helped him make it through. Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. Thank you for your assistance in this matter. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. Im 32 years old and didnt expect at all that my aorta would dilate. Doing nothing wont be great for my heart and wont extend my life neither probably.. I was disappointed [when I was diagnosed]. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Hope to hear back soon. Thanks! Really helpful. Bicuspid Aortic Valve Im paranoid to exercise too much for fear that I will do damage to the valve. Finally some solid information about exercise and life post AVR, thank you very much for that. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. mod-severe regurgitation For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. Miley Cyrus - Singer & Actress - Tachycardia. I currently run 40 -50km a week and do two 2 hour intensive yoga sessions a week. So unfortunately it sounds like i am part of that grey area. Likewise, if I did a 60kg bench press I could easier than say an 18 year old girl started at the gym tried that, they would have to strain beyond belief. "I am lucky to be here.". The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. The only prudent course is to have periodic follow-up imaging to keep track of size/growth. I have been feeling better than before the surgery and I feel with better condition on the trails. It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. I am perfectly happy to stick to the 10km max distance for races, but my key concern is that if I do run some faster training sessions then I might have a sudden death. "Thanks to the team at the Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery," he wrote. Since then I completed several 10k races and one half-marathon. Pathology. If the valve does not close completely, blood can leak into the heart. Aortic stenosis and bicuspid aortic valve (BAV) Almost 15 years ago skilled surgeons replaced my aorta valve with a new replacement valve. Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). I have: O'Donnell suffered a heart attack in 2012, and wrote about her experience on her blog. Bicuspid Aortic Valve with trivial AR. . Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. I was just curious if there any way to know if my valve is affecting my times at all? I have no proof this may be causing my less than stellar performance or if perhaps I should have more patience. There are many surgical options depending upon the particular circumstances. What advise can you give to someone in my position? Only your cardiologist and heart surgeon will be in a position to make those considerations. Thanks for sharing your experience, Randy. Does lifting weights up to 100 pounds and being cleared for push-ups, pull-ups, all cardio, etc., sound reasonable? It also featured an extended chat with Schwarzenegger's old boss James Cameron, and, despite an attempt, not even the mighty Arnold could pry any Avatar 2 secrets loose. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. The recovery from heart surgery can be hard to predict for any given patient, but we know that young otherwise healthy patients tend to do well. He was very talented at football. To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. Im a 44 year old male. I dont have any ayptoms. Bicuspid valves are quite common (1-2 percent of the population). Have been told to keep away from exercises that strain me, ie heavy weights. Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm. The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. You have a good understanding of the issues. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). And its always valuable to frame up discussion in terms of how much risk is acceptable. Also I lift weights . He/she can talk with you about the generalities of operation in your circumstance. Push for earlier date? Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. Again, there are ACC/AHA guidelines for when operation is needed: Sometimes more than one indication for operation may be present, so there is the additional guideline for patients who need operation for aortic stenosis or regurgitation: I know from discussion with athletes over the past few years that there are differences of opinion among cardiologists and heart surgeons about these guidelines. Join Vanity Fair to receive full access to VF.com and the complete online archive now. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. Lack of breath? The Best Amazon Presidents' Day Deals of 2023. This is true at rest and may be even more so during exercise.

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